Thursday, December 29, 2011


365 days ago this little face came into our world... and has rocked it ever since!

these tasty toes have grown and are still as yummy as the day she was born!
She is a joy and the best baby ever... in some ways shes even easier (if that's possible) than her older cousin
She's too much fun and keeps us laughing non stop with her happy little self.
 now to do SOMETHING with that wild wild hair LOL...
Happy 1st birthday my sweet itty bitty Halo you are officially 365 and 22 minutes old now!   we love you Grandma and papa :)

Monday, December 26, 2011

Christmas Fun...

Halo was having fun playing with the paper as she tried to open her present
 She is all grins giggles and squeals
 Bradley is very precise each little piece of paper must go in the trash bag before the next came off
 Stephanie all smiles
 Bradley opening his TRAIN!!
 and riding it all over,  Halo was a tad bit excited!
 Gimmie my ball Momma....
 well what did you do with it???
 Bradley Got a roller coaster from his aunts and they brought it in for him to play and his train fit it perfectly.  it was all mike could do to hold Halo back
 Halo finally got a turn to ride too, that little car goes FAST!
 Bradley made 5000 trips up and down if he made one and totally loves this toy
 he is all giggles and grins
 he would pick the train up (and it is not real light) and tote it back every trip... was so funny Cory would get in his way and he would say move pease daddy move pease!!
then back to the start again.... and again...and again
the kids had a ball and because they did we did too.... Hope you had as much fun as we have...
and a nice day of recovery today :) 
may God bless you and keep you until we meet again :)

Sunday, December 25, 2011

Merry Christmas

Merry Christmas Everyone,  Happy holidays to those who don't celebrate Christmas and happy Hanukkah and what ever else anyone calls is Happy Sunday :)  Hope your day is filled with fun and joy family friends and all the good things in life.
love n hugs
God Bless you and keep you till we meet again :)

Friday, December 23, 2011

As we continue to rule things out!

1st, thanks to my (step) mom who bought the kids christmas outfits we love them !! I simply dont have an eye for things like that and am about 40 years behind in fashion except for my lovely purse (thanks again Hallie everyone who sees it loves it) 

now to the update i know you all are DYING to read... you are probably sick of the drama, I know I am.

Anyway... Dr Sethi confirmed what  I already believed ... we have totally ruled out a brain tumor (thank God) we have totally ruled out pseudotumorcerebri (again thank you God)  all of the tests on my spinal fluid were normal i cant even remember what they all were but I do not have MS I do not have something with cones  glucose was good protien was good and about 5 others that I cant even remember are all good. 

My two dr's had a phone conference and decided to rule out lyme diease and Cat scratch Fever as well so I had more blood drawn for that and had chest x rays to rule out scaroid sarcoid something or another I looked at the x rays and all I could tell was I have lungs and lymph nodes... and a spine :)  

By the changes in my eye (i do have pics but have not bothered to scan them yet)  the diamox makes me lazier and very sleepy... thats my excuse and I am sticking to it  but anyway  by the changes inmy eye  they are totally leaning toward cat scratch fever, and whats in my eye is called neuroretinitis... I have started on a month of antibotics and will wean off the diamox in the next two days as I really dont need it since i dont have the pseudo tumor...

well the darlin hubby says he is starving so i must go fix him something to eat (i ate at 4 cause i missed earlier being at the hospital having stuff done... so  if I dont see you before then, MERRY CHRISTMAS and all the other holidays that i cant spell if you celebrate them ... and God bless you and keep you till we meet again

Tuesday, December 20, 2011

christmas pics of the babies.... Finally!

They love each other so much
 he took the bulb from her...
 she told him where to put it
 he was not cooperating well as he was worn out and totally silly, she was tired and ready to play
 love them baby feets
 finally big grins
 mr ham bone
 Aunt Stephie and Halo
 SEE I can stand all by my self.... not walking yet but can stand for ages  and dance too
 still standing
 in the play room looking a bit guilty of something....
well thats all folks... of course there are more pics but.... must keep the post from boring you to tears.
love hugs and God bless you and keep you until we meet again. :)

Saturday, December 17, 2011

Its saturday evening....

On Friday  Michael and I got up and left home by 7 am to get to my 815 appt, as we really had no idea where the heck we were going and ended up parking just about as far away as you possibly could in the 16 block area of the hospitals, the lady at Dr sethi's office was more confused than ME on where I was to go to have this LP done... it was actually in the xray dept in the hospital.  so good thing we were early or we would have never  found it on time.  
They got me right back to the back and of course it took forever to do the paper work then into xray I went... Yes I survived, not it was not particularly painful (at times it was but the pain did not last long) when the nurse HIT THE NEEDLE in my back with the xray machine ... well thank GOD i had plenty of local on board or I am sure I would have come off the table and done my best to return the pain.  oddly enough it was mostly just really uncomfortable and the worst part was him removing the needle.  Reminded me a great deal of the weird pain of when they removed the JP drains 6 years ago after surgery.
my CSF level was only a 9 (could be a bad reading or it really could be NORMAL) which 10 is normal... it took FOREVER it seemed to get the BIG tube full of Fluid... as they have to allow it to drain by gravity...
anyway we came home after and michael took good care of doing everything for me and when the local wore off i was really sore for about 24 hours...
Today I decided I HAD to get things done so I can mail stuff off for christmas... and it took me the better part of the day (i was going slow and taking lots of breaks I did not buy too much for the kids of course now I would not do that)  Stephanie came by and got the stuff I had gotten for them for Bradley for his christmas at their house to go with the things they had gotten too... the rotten boy is gonna have a HUGE christmas 430 i could not hold my head up so went to bed for a few now am up having my evening coffee and telling you all about it :) 
I still am not done by the way, still have a few things to pick up tomorrow and then of course have to get to the post office on monday so... hopefully things wont be late.  but if they are... I simply cant help it. 
the vision I thought might be a bit better yesterday but today... its as bad as it has been... the Diamox is a dieuretic but i dont see where it makes me go any more than normal.  I go back to the retina dr on wednesday and the neuro on friday... oh and if you want to have a heart attack... some bills have begun to come in.... so far things have cost well over 10 thousand dollars... sigh... oh well they will get a LITTLE at a time and will have to be happy with that.    I did about fall over at some of the costs... HA  as if I should be suprised at it.   Well cant be too bothered  have had good care and they have been good about working with (so far ) lol   they might as well be cant suck blood from a turnip! 
well my GF Laura is texting me shes in Savannah... and gonna have crab legs for supper has me drooling a pool here... so i best go figure out something to eat....prolly a stinkin ole hamburger since thats all i have here to work with and its the easiest thing to make
Happy Saturday Ya'll God bless you and keep you till we meet again :)

Wednesday, December 14, 2011

News! :D

I went to the Neurologist today... I DO NOT have a brain tumor... I do have pseudotumorcerebri.  She said they don't know what causes it to occur but what it is in a nut shell is that one, my body is making too much cerebral spinal fluid and two, it is not draining properly.  so she put me on Diamox to help get the fluid off and I am scheduled on Friday for a spinal tap which will measure the pressure and then she is also having some tests run on the fluid, to rule out some things and to diagnose ... I also have some kind of infection (POSSIBLY) as one of my labs was pretty far off kilter so she ordered it to be redone along with some other labs which I went and had drawn today.   so schedule is like this... Friday spinal tap, next Wednesday back to Dr Marcus (the retina specialist) then on Friday back to Dr Sethi for spinal tap and blood work results :)  
she tested my vision again,  and i have 20/70 ish in my left eye and 20/20 in the right  and hopefully when the pressure is back to normal most if not all of my vision will come back :)

So thats where we are now and very happy to hear that it is something totally treatable and not life threatening.   Thank you for all the prayers and keep them coming :)
God bless and keep you till we meet again!

Sunday, December 11, 2011

just a quickie

The dr told me that no call was good news,  so am takinghimat hisword... I go to the neurologest on wednesday,  shes been in practice 33 years and is rated one of thebest in the south east.  Michael is goingwith me  onwednesday... My stupid space bar is stickingagain...GRRRR

the other day we  got Halo dressed up inher christmas outfit,  and I came to the realisation that my view eye isof course my left oneso took pics blindly... but they turned out great I think
Little miss personality.
 shesquite the ham
 andof course i cut her head in the best smiling pic :)
 Stephanie and I took bradley to the mall to play after his last dr appt, he had aball
 the slide got a work out from him and some otther little boys...
 andmy darn  batteries died as I took thispic... but it was too cute :) 
anyway, vision is abotu the same now am seeing flashing at times which isa total pain in the ass... and have totally taken ALL meds out  of me since my last dr appt and am pretty sure this has all been happening  a while longer than I thought.  I think the  tylenol and my incredably high tolerance for pain have masked alot of stuff and I think I blamed  my old transitions glasses for some vision issues that I truely believed was the  glasses and even the eye people did at first too... so I dont feel too stupid....   anyway will let y know morewhen Iknowmore.... Debbie  got hugs and kisses from your babiestoday andtook somepics butthey are not loaded yet, haveto get halo ready to gopickup hermomfromwork.... so belookingwill havepicssoon:)
God blessandkeep you   till we meet again!

Friday, December 2, 2011

MRI today

well I have never considered my self to be claustrophobic(how ever it is spelled) but I must confess I nearly freaked out... after the first 4 or 5 seconds I knew this was gonna be a  trip and kept reminding myself of all the babies /children who go through this type of tests and figured if they can do it I can too...

I did have to ask to be let out when she was putting the dye in my veins, but i still could not move my head. BUT in the end I survived it... the nurse heard my bones popping when I stood up after an hour and 15 minutes in the machine and kind of laughed told her they were thanking her for letting me out!

I have a disc with the pictures of my brain, but am not sure how to save them from the disc to my computer.  But in my educated mind the best i can GUESS at this point is that I did not see a tumor of any kind in my head... however I also don't have any visible ventricles on the right and very little on the left and my left eye orbit is much smaller in one view because of the swelling of my brain pushing into it.
I have lost just about all of the vision in my left eye and if it continue like it has in the last 3 weeks I figure I will be completely sightless in my left eye very soon.  I am hoping/ praying that If this is pseudotumorcerebri that once they get the pressure and fluids in my brain regulated that my sight will return.

The nurse said that  the dr should have my MRI results on monday and if my vision gets worse to call him on monday. Anyway thats where things are today :)

God bless you and keep you until we meet again ! Love n hugs and thank you for the prayers :)