Thursday, January 26, 2012

quickie update...

nothing you dont already know i am sure...
but my dx is neuroretinitis caused by cat scratch fever, even though both blood tests were negative, he said i could have had the scratch a year or more ago... but i have not had alot of the symptoms ... just my eye and now a couple lymph nodes in the back of my head are swollen but today they are not as big as yesterday but from what i see it could be MONTHS before they go down and MONTHS before i see any differently...  DR patel changed my antibotic to a stronger one of the same azithromyicin and he now has a PHARMACY in his OFFICE!!!!!!!!  so they filled it there and no more of the every three day bs. :D   
he was very excited to be able to look into my eye and called his PA student in to have a looksee too.

Well have house work waiting on me...
had a cousin who has been very ill for a long time pass away the other night so have been busy running doing things we do when there is a death in the family... but wanted to do a quickcheck in..

may God bless you and keep you until we meet again!   :)

Monday, January 23, 2012

Rainy days and mondays toss in some thick fog for free...

well its a rainy FOGGY monday and I was out in it. 

I met a lady and bought a really nice coach purse from her for 20 bucks... its a bit smaller than my Hallie purse and brown but something about it called my name.  Then I had to go to Augusta to pick up some DVD +R discs that I had purchased to make some copies of vhs tapes that We would like to see again, or the kids would like to see ... and then to JERSEY MIKES (yes I am hooked)  got a club sub today... it was good but I still love the steak and cheese best... then to the pharmacy for my EVERY FRICKIN 3 DAY pick up of my RX... they wont give me the full RX only three days at a time which is utter BULLSHIT... and a pain in my butt... but, what do you do... its either go every three days or dont get the meds.

I dont see any difference in my vision yet... I have drs appts the next three wednesdays in a row to three different drs... this weeks is to the infectious diease dr,  next weeks to an endocrineologest, and the week after back to the retina specialest... then in april back to the neurologest...

I noticed last night i have a somewhat painful knot in the right back side of my head,  parallel to my ear and a finger length from my ear... not sure if there is a sinus cavity there that is stuffed up, seems like there is though. so will be asking on wednesday....

Had I realised just how nasty and foggy out it is I may have postponed going out in it but, once out figured what the heck might as well get it over and done with.  

Stephanie got a second job so I will be seeing Bradley more, he will be here this evening then all day tomorrow and maybe after my dr appt wednesday if I get out it time... or maybe even if I DONT she can bring him to the drs... :)  maybe give them incentive to get a move on... GAH.

Martha sent me a text yesterday telling me that they have decided that they will move to florida the end of march... not happy about it but, what do you do... its like I told her... I can live with her moving away even can embrace it but, TOTALLY HATE that she is choosing to move with him.... I dont, wont, never will trust him and told her so and told her why... Anyway  I pray she never regrets her choices. 

I went back to my old blog again and read from 4 years ago today and 3 years ago today... both fairly depressing days...One 4 years ago had to do with today being the funeral for a 4 yr old little boy who had brain cancer, that is still a heartbreaker, I talk to his mom once in a while and read her posts on facebook daily.  and 3 years ago apparently was high stress time so thankfully it is not so high stress right now as it was then.... I kinda like going back seeing where i was and what was happening... makes me greatful those days are past.   hopeful not to revisit.  and keep me looking forward to much better days.

oh am blathering on now saying nothing so until we meet again... may God bless you and keep you .  Love n hugs ME :)

Saturday, January 21, 2012

Do you ever go back...

to your very first blog post and see what you were thinking?
i went back to mine march of 2006 (my first  blogger post) i had a yahoo blog several years before blogger but yahoo deleted their blogs... anyway mine was BLANK!!!! lol so my second post was what i visitied...
Funny,Sad, huge MEMEORIES  in those old posts...

March 22. 2006
sisterhood of the traveling....


sisters together again.... we had not seen each other in many years... have talked some but not near enough. we have had a good time running around augusta, spending time being bored together. so we shall see where there sisterhood of the traveling .... takes us ;-)
 
I had 0 comments in fact it was several months of blogging before anyone other than my sister made any comments.... but then eventually I met some amazing women and a couple amazing men as well....
some i have been blessed to meet in person, some I WILL eventually meet in person and some have come and gone as our lives were only ment to share paths for a while ... but all amazing memories and I have to say I am thankful that my sister decided to teach me about blogger and set up my original account for me ... for those who have been around for years you know this is my second blogger blog. :) I retired my first and sometimes wish i had not because in the end I ended up buying photo space (which is what i was trying to not have to do when i created a second blog)
 
so back to the original question.... do you ever go back and revisit your old posts???

Monday, January 16, 2012

Case studies!

Well I went to the neurologest today... All the labs drawn last week are normal, with the exception of the ones that show I have an infection... HOWEVER those number have dropped drastically too so very close to normal.  
the dr asked me if I would mind if she took the eye pics and other info WITHOUT my name included to the MEDICAL COLLEGE OF GEORGIA (GEORGIA HEALTH SCIENCES) case study review that they do each year... Told her I think that would be awesome!  so I get to be a case study... cause see ... BWHAHA what a play on words there... SEE we have a sort of diagnosis. NEURORETINITIS but, we still have NO CAUSE!
so someday when you are looking up neuroretinitis the EYEBALLS you see  may very well be mine!  
she still thinks that this is actually been caused by cat scratch fever,  but the second titers also came back normal... so... we will see next week what the infectious diease guy thinks...
In the mean time I asked for some labs to be drawn so that I know where  I stand on things that I have not had drawn in years.  so she said see you in three months and will call you when labs come in !
my vision is still about the same,  she tested them this morning still 20/20 in my rigth eye and 20/50 ish in the left... but the preferial has not changed at all.
well must go to bed am tired and Bradley will be here soon.
Love hugs and God bless you and keep you till we meet again :)

Saturday, January 14, 2012

I dont know where the time goes

really I don't... it seems like it was Wednesday yesterday but I am told that it is actually Saturday nearly Sunday...
Michael was so kind as to share his cold with me... and I hate to let him know so I have not , that i believe it is something viral because I have been on antibiotics for 3 weeks now, and have him taking my old ones since there are 11 days of it left and they put me on a stronger one for the next 30 days.... yeah yeah I know but its not gonna hurt him and who know might actually help a bit... in fact he does seem to be a bit better (prolly it has run its course in him ) but... anyway ...
I have been sleeping a lot, as much as i can when i can clear my snot nose out enough to be able to breath with the c pap on...and being lazy and being lazy...
i still cant tell much difference in my vision, I go back to the neurologist Monday so who knows maybe some or all of the labs that were drawn on Wednesday will be  completed, interesting thing when dealing with the Dr's who are affiliated with the hospital, now they can pull my file up on their computers and see everything even what other Dr's have done and test results etc... so pretty cool actually.
well I have been playing catch up on your blogs and hopefully managing to leave comments or just saying hi :)
Love n hugs and God bless you and keep you until we meet again :)

Wednesday, January 11, 2012

New dr today....

Today I met with an Infectious diease dr,  He ordered a ton more blood work , some, most infact is repeats of what I have had done before.   The diagnosis is NEURORETINITIS... the cause is STILL UNKNOWN.  He also changed my  anitbotic to a stronger one for a month, and if that does not work and depending on the lab results then IV antibotics.  and maybe steriods... they are testing for some interesting things ... TB is one, because yes at some point in my 16 yr nursing carrier I have worked with and been exposed to TB... my skin tests and X rays are all clear... so this is called a GOLD test... and is done with blood,  they are also redoing the cat scratch fever titers as they will often give a false negative... but when reading on Diffuse Unilateral Subacute Neuroretinitis   which is another name tossed out today... is really bizzare and is caused more or less by cat scratch fever... is a WORM!!!  EEK.... anyway   the pics of my eye are way cooler than the ones they show when you look this up on line , however there are totally identical looks about them... I took a pic of my eye pics with my phone so its a bit crooked...
anyway we are still on the hunt for a cause and hopefully finally on the right track for a treatment even without knowing. anyway thats the news of today...
Hope all is well in your necks of the woods :)
Love n hugs
God bless you and keep you until we meet again :)

Wednesday, January 4, 2012

Turkey and Dumplins & One more thing it is NOT.

I decided to make Turkey and dumplins yesterday as it was So cold out and Michael is working on a cold... and it simply sounded GOOD.
It turned out way more than good it was fantabulous, the smoked turkey added a dimension of flavor that I did not  expect.

the little bit that was left over Michael and Martha split and  devoured... and said it was better the next day than the first day... hard to imagine that.   we are thinking up all kinds of things to smoke and enjoy in the coming years... and different Ideas of ways to make the left overs into something amazing too :)

On to today... had my appointment with The retina specialist... He is more confounded and disturbed than I am at this point.   the blood work for Cat scratch fever is negative as is everything else that I have been tested for... The list of ruled out things is as follows and there are some others I am not sure of the correct names of... but, Brain tumor, pseudotumorcerebri, MS, syphilis, gonorrhea, diabetes, TB, scarodoisis, several other things that were tested with the spinal fluid all ruled out or are Normal!!! Ha HA HA look out I AM NORMAL!... the only test left we are waiting for results on is Lyme disease... the Dr's are sending me to an infectious disease Dr in hopes that he will be able to turn up something that maybe was missed or a faulty blood test ... I go to him next week and the week after I go back to the neurologist then in a month back to the retina Dr... the good news of the day my vision and eye are NO WORSE... they are no better either ... but no worse is good. 

Hope all  is well with all of you in the New Year :) 
God Bless you and Keep you Until we meet again!

Sunday, January 1, 2012

I must have blinked....

because all of a sudden it is 2012 and I somehow totally don't feel as if it should be ...

the last week of the year has held the highest highs and the lower lows.....

we had Halo turn a year old and the next day  I got to go with a young woman that I met this past summer while she had her baby, I got to share in him being born and cutting the cord :) something I did not get to do with my kids (cut the cords ) or with the grand kids ...
Say Hi to Bentley, he was born at 2:05 pm on the 30th and weighed in at 7 pounds 1 ounce :)
 and HI to Chacedie and a much Happier Bentley :)
new years eve I spent running picking up all I had not gotten done, plus going to the hospitals to do some visiting of The kids and  then a cousin. then home to get prepared for new years day... because no matter what else happens we must have collards and black eye peas and this year we got to smoke our first turkey.... cause Santa Michael brought me the smoker I wanted for Christmas :)
 it is a wonder that neighbors did not follow their noses... I sat outside for a while just to take in the smell OH HAVE MERCY....
it was over the top delicious....and since only Martha and Halo made it over, Cory had to work this weekend... there is over half the birdy left to drool over tomorrow and later in the week.


on the night of the 30th Halo and Martha came over and halo was riding the roller coaster (I found a used one the day after Christmas so now there is one here just like Bradley's... and all the kids love it...
She was having a ball...
Even the over the recommended age of 5 year old kids love it...
I caught Cory sitting on the ride Christmas day LOL

sometimes she makes this silly face when the camera flash gets to her ... it cracks me up every time!
 Halo and Martha were playing with cap i tiller (yes we pronounce it the way I typed it)
 then jump back to this afternoon... halo was loving gnawing on a turkey thigh bone...
 she offered her prize to me... for a second then went NO NO NO... and took it back...
 then more play time with Capitillar and papa... before time to go home and let grandma rest LOL... Till tomorrow...
I think I will choose not to talk about the lows of the end of the year but for those who know me ... one word will explain all... MOTHER
anyway hope you have all had a wonderful  and safe New years Eve and New years Day and prayers for a bright and healthy and happy new year for all. 
Love n hugs
God bless you and keep you until we meet again
:)  and i go to the retina dr on the 4th !