Merry Christmas Everyone, Happy holidays to those who don't celebrate Christmas and happy Hanukkah and what ever else anyone calls is Happy Sunday :) Hope your day is filled with fun and joy family friends and all the good things in life.
love n hugs
God Bless you and keep you till we meet again :)
Sunday, December 25, 2011
Friday, December 23, 2011
As we continue to rule things out!
1st, thanks to my (step) mom who bought the kids christmas outfits we love them !! I simply dont have an eye for things like that and am about 40 years behind in fashion except for my lovely purse (thanks again Hallie everyone who sees it loves it)
now to the update i know you all are DYING to read... you are probably sick of the drama, I know I am.
Anyway... Dr Sethi confirmed what I already believed ... we have totally ruled out a brain tumor (thank God) we have totally ruled out pseudotumorcerebri (again thank you God) all of the tests on my spinal fluid were normal i cant even remember what they all were but I do not have MS I do not have something with cones glucose was good protien was good and about 5 others that I cant even remember are all good.
My two dr's had a phone conference and decided to rule out lyme diease and Cat scratch Fever as well so I had more blood drawn for that and had chest x rays to rule out scaroid sarcoid something or another I looked at the x rays and all I could tell was I have lungs and lymph nodes... and a spine :)
By the changes in my eye (i do have pics but have not bothered to scan them yet) the diamox makes me lazier and very sleepy... thats my excuse and I am sticking to it but anyway by the changes inmy eye they are totally leaning toward cat scratch fever, and whats in my eye is called neuroretinitis... I have started on a month of antibotics and will wean off the diamox in the next two days as I really dont need it since i dont have the pseudo tumor...
well the darlin hubby says he is starving so i must go fix him something to eat (i ate at 4 cause i missed earlier being at the hospital having stuff done... so if I dont see you before then, MERRY CHRISTMAS and all the other holidays that i cant spell if you celebrate them ... and God bless you and keep you till we meet again
now to the update i know you all are DYING to read... you are probably sick of the drama, I know I am.
Anyway... Dr Sethi confirmed what I already believed ... we have totally ruled out a brain tumor (thank God) we have totally ruled out pseudotumorcerebri (again thank you God) all of the tests on my spinal fluid were normal i cant even remember what they all were but I do not have MS I do not have something with cones glucose was good protien was good and about 5 others that I cant even remember are all good.
My two dr's had a phone conference and decided to rule out lyme diease and Cat scratch Fever as well so I had more blood drawn for that and had chest x rays to rule out scaroid sarcoid something or another I looked at the x rays and all I could tell was I have lungs and lymph nodes... and a spine :)
By the changes in my eye (i do have pics but have not bothered to scan them yet) the diamox makes me lazier and very sleepy... thats my excuse and I am sticking to it but anyway by the changes inmy eye they are totally leaning toward cat scratch fever, and whats in my eye is called neuroretinitis... I have started on a month of antibotics and will wean off the diamox in the next two days as I really dont need it since i dont have the pseudo tumor...
well the darlin hubby says he is starving so i must go fix him something to eat (i ate at 4 cause i missed earlier being at the hospital having stuff done... so if I dont see you before then, MERRY CHRISTMAS and all the other holidays that i cant spell if you celebrate them ... and God bless you and keep you till we meet again
Tuesday, December 20, 2011
christmas pics of the babies.... Finally!
They love each other so much
love hugs and God bless you and keep you until we meet again. :)
Saturday, December 17, 2011
Its saturday evening....
On Friday Michael and I got up and left home by 7 am to get to my 815 appt, as we really had no idea where the heck we were going and ended up parking just about as far away as you possibly could in the 16 block area of the hospitals, the lady at Dr sethi's office was more confused than ME on where I was to go to have this LP done... it was actually in the xray dept in the hospital. so good thing we were early or we would have never found it on time.
They got me right back to the back and of course it took forever to do the paper work then into xray I went... Yes I survived, not it was not particularly painful (at times it was but the pain did not last long) when the nurse HIT THE NEEDLE in my back with the xray machine ... well thank GOD i had plenty of local on board or I am sure I would have come off the table and done my best to return the pain. oddly enough it was mostly just really uncomfortable and the worst part was him removing the needle. Reminded me a great deal of the weird pain of when they removed the JP drains 6 years ago after surgery.
my CSF level was only a 9 (could be a bad reading or it really could be NORMAL) which 10 is normal... it took FOREVER it seemed to get the BIG tube full of Fluid... as they have to allow it to drain by gravity...
anyway we came home after and michael took good care of doing everything for me and when the local wore off i was really sore for about 24 hours...
Today I decided I HAD to get things done so I can mail stuff off for christmas... and it took me the better part of the day (i was going slow and taking lots of breaks I did not buy too much for the kids of course now I would not do that) Stephanie came by and got the stuff I had gotten for them for Bradley for his christmas at their house to go with the things they had gotten too... the rotten boy is gonna have a HUGE christmas LOL...by 430 i could not hold my head up so went to bed for a few hours...so now am up having my evening coffee and telling you all about it :)
I still am not done by the way, still have a few things to pick up tomorrow and then of course have to get to the post office on monday so... hopefully things wont be late. but if they are... I simply cant help it.
the vision I thought might be a bit better yesterday but today... its as bad as it has been... the Diamox is a dieuretic but i dont see where it makes me go any more than normal. I go back to the retina dr on wednesday and the neuro on friday... oh and if you want to have a heart attack... some bills have begun to come in.... so far things have cost well over 10 thousand dollars... sigh... oh well they will get a LITTLE at a time and will have to be happy with that. I did about fall over at some of the costs... HA as if I should be suprised at it. Well cant be too bothered have had good care and they have been good about working with (so far ) lol they might as well be cant suck blood from a turnip!
well my GF Laura is texting me shes in Savannah... and gonna have crab legs for supper has me drooling a pool here... so i best go figure out something to eat....prolly a stinkin ole hamburger since thats all i have here to work with and its the easiest thing to make
Happy Saturday Ya'll God bless you and keep you till we meet again :)
They got me right back to the back and of course it took forever to do the paper work then into xray I went... Yes I survived, not it was not particularly painful (at times it was but the pain did not last long) when the nurse HIT THE NEEDLE in my back with the xray machine ... well thank GOD i had plenty of local on board or I am sure I would have come off the table and done my best to return the pain. oddly enough it was mostly just really uncomfortable and the worst part was him removing the needle. Reminded me a great deal of the weird pain of when they removed the JP drains 6 years ago after surgery.
my CSF level was only a 9 (could be a bad reading or it really could be NORMAL) which 10 is normal... it took FOREVER it seemed to get the BIG tube full of Fluid... as they have to allow it to drain by gravity...
anyway we came home after and michael took good care of doing everything for me and when the local wore off i was really sore for about 24 hours...
Today I decided I HAD to get things done so I can mail stuff off for christmas... and it took me the better part of the day (i was going slow and taking lots of breaks I did not buy too much for the kids of course now I would not do that) Stephanie came by and got the stuff I had gotten for them for Bradley for his christmas at their house to go with the things they had gotten too... the rotten boy is gonna have a HUGE christmas LOL...by 430 i could not hold my head up so went to bed for a few hours...so now am up having my evening coffee and telling you all about it :)
I still am not done by the way, still have a few things to pick up tomorrow and then of course have to get to the post office on monday so... hopefully things wont be late. but if they are... I simply cant help it.
the vision I thought might be a bit better yesterday but today... its as bad as it has been... the Diamox is a dieuretic but i dont see where it makes me go any more than normal. I go back to the retina dr on wednesday and the neuro on friday... oh and if you want to have a heart attack... some bills have begun to come in.... so far things have cost well over 10 thousand dollars... sigh... oh well they will get a LITTLE at a time and will have to be happy with that. I did about fall over at some of the costs... HA as if I should be suprised at it. Well cant be too bothered have had good care and they have been good about working with (so far ) lol they might as well be cant suck blood from a turnip!
well my GF Laura is texting me shes in Savannah... and gonna have crab legs for supper has me drooling a pool here... so i best go figure out something to eat....prolly a stinkin ole hamburger since thats all i have here to work with and its the easiest thing to make
Happy Saturday Ya'll God bless you and keep you till we meet again :)
Wednesday, December 14, 2011
News! :D
I went to the Neurologist today... I DO NOT have a brain tumor... I do have pseudotumorcerebri. She said they don't know what causes it to occur but what it is in a nut shell is that one, my body is making too much cerebral spinal fluid and two, it is not draining properly. so she put me on Diamox to help get the fluid off and I am scheduled on Friday for a spinal tap which will measure the pressure and then she is also having some tests run on the fluid, to rule out some things and to diagnose ... I also have some kind of infection (POSSIBLY) as one of my labs was pretty far off kilter so she ordered it to be redone along with some other labs which I went and had drawn today. so schedule is like this... Friday spinal tap, next Wednesday back to Dr Marcus (the retina specialist) then on Friday back to Dr Sethi for spinal tap and blood work results :)
she tested my vision again, and i have 20/70 ish in my left eye and 20/20 in the right and hopefully when the pressure is back to normal most if not all of my vision will come back :)
So thats where we are now and very happy to hear that it is something totally treatable and not life threatening. Thank you for all the prayers and keep them coming :)
God bless and keep you till we meet again!
she tested my vision again, and i have 20/70 ish in my left eye and 20/20 in the right and hopefully when the pressure is back to normal most if not all of my vision will come back :)
So thats where we are now and very happy to hear that it is something totally treatable and not life threatening. Thank you for all the prayers and keep them coming :)
God bless and keep you till we meet again!
Sunday, December 11, 2011
just a quickie
The dr told me that no call was good news, so am takinghimat hisword... I go to the neurologest on wednesday, shes been in practice 33 years and is rated one of thebest in the south east. Michael is goingwith me onwednesday... My stupid space bar is stickingagain...GRRRR
the other day we got Halo dressed up inher christmas outfit, and I came to the realisation that my view eye isof course my left oneso took pics blindly... but they turned out great I think
Little miss personality.
lovenhugs
God blessandkeep you till we meet again!
Friday, December 2, 2011
MRI today
well I have never considered my self to be claustrophobic(how ever it is spelled) but I must confess I nearly freaked out... after the first 4 or 5 seconds I knew this was gonna be a trip and kept reminding myself of all the babies /children who go through this type of tests and figured if they can do it I can too...
I did have to ask to be let out when she was putting the dye in my veins, but i still could not move my head. BUT in the end I survived it... the nurse heard my bones popping when I stood up after an hour and 15 minutes in the machine and kind of laughed told her they were thanking her for letting me out!
I have a disc with the pictures of my brain, but am not sure how to save them from the disc to my computer. But in my educated mind the best i can GUESS at this point is that I did not see a tumor of any kind in my head... however I also don't have any visible ventricles on the right and very little on the left and my left eye orbit is much smaller in one view because of the swelling of my brain pushing into it.
I have lost just about all of the vision in my left eye and if it continue like it has in the last 3 weeks I figure I will be completely sightless in my left eye very soon. I am hoping/ praying that If this is pseudotumorcerebri that once they get the pressure and fluids in my brain regulated that my sight will return.
The nurse said that the dr should have my MRI results on monday and if my vision gets worse to call him on monday. Anyway thats where things are today :)
God bless you and keep you until we meet again ! Love n hugs and thank you for the prayers :)
I did have to ask to be let out when she was putting the dye in my veins, but i still could not move my head. BUT in the end I survived it... the nurse heard my bones popping when I stood up after an hour and 15 minutes in the machine and kind of laughed told her they were thanking her for letting me out!
I have a disc with the pictures of my brain, but am not sure how to save them from the disc to my computer. But in my educated mind the best i can GUESS at this point is that I did not see a tumor of any kind in my head... however I also don't have any visible ventricles on the right and very little on the left and my left eye orbit is much smaller in one view because of the swelling of my brain pushing into it.
I have lost just about all of the vision in my left eye and if it continue like it has in the last 3 weeks I figure I will be completely sightless in my left eye very soon. I am hoping/ praying that If this is pseudotumorcerebri that once they get the pressure and fluids in my brain regulated that my sight will return.
The nurse said that the dr should have my MRI results on monday and if my vision gets worse to call him on monday. Anyway thats where things are today :)
God bless you and keep you until we meet again ! Love n hugs and thank you for the prayers :)
Subscribe to:
Posts (Atom)